Resources
SBU Based Resources for families
Books & Articles
- James Bounces Back...Back to School & Jessie Bounces Back...Back to School
written by Debra Giugliano Trezza RN MS, CPNP
- The Care of My Child with Cancer: Parents' Perceptions of Caregiving Demands
- Boy of Steel by Ray Negron
- The Angel Letters Lessons that Dying Can Teach Us About Living by Norman J. Fried, Ph.D.
Websites
- National Children's Cancer Society's website
- I'm too young for this website — Matthew Zachary, “Stupid Cancer Show”
- The Living Through Learning Foundation
- A Mother's Kiss
- American Cancer Society
- American Cancer Society/ Camp Adventure
- American Society of Clinical Oncology
- American Society of Pediatric Hematology/Oncology (ASPH/O)
- Back in the Game
- Bereaved Parents of the USA
- Bob Sweeney;s Camp Comfort/ H.O.P.E
- Brain Tumor Society
- Camp Happy Times/ Valerie Fund
- Cancer Care
- CancerSourceKids
- Candlelighter’s Childhood Cancer Foundation (CCCF)
- Child Champions Network
- Chai Lifeline/Camp Simcha
- Child Life Services at Stony Brook University Medical Center
- Child Life Council, Inc.
- Childhood Brain Tumor Foundation, The
- Children’s Cancer Association
- Children’s Oncology Group (COG)
- Clinical Trials
- COPE (Connecting Our Paths Eternally)
- Comfort Zone Camp, Inc.
- Compassionate Friends National Office, The
- CureSearch National Childhood Cancer Foundations
- Defeat Cancer (more for adults but excellent website)
- Epilepsy Foundation of Long Island
- Friends of Betsy Toy Schowerer Foundation
- Friends of Karen
- Good Shepard Hospice
- Honeysuckle Foundation of Children with Cancer
- Hope Street Kids
- Hospice Care Network
- Jay’s World
- John Thiessen Children’s Foundation
- Lance Armstrong Foundation
- Leukemia & Lymphoma Society
- Long Island Snap, The Special Needs Advisory Partners
- Make-A-Wish Foundation of: America; Metro New York; Suffolk
- Marty Lyons Foundation, The
- Marvin Tiger Foundation
- Michael Magro Foundation
- Mineola Youth and Family Services
- Morgan Center, The
- National Bone Marrow Donor Program (NMDP)
- National Cancer Institute
- National Institutes of Health (NIH)
- Oncology Nursing Society (ONS)
- Our Little Heroes Network
- Patient AirLift Services
- Patient-Centered Guides
- Play Fit-Stay Fit
- Ronald MacDonald House
- Sarah Grace Foundation, The
- Schneider Children’s Hospital
- SIB Place/ Suffolk Nassau Communities Hospital
- SuperSibs!
- Songs of Love Foundation
- Splashes of Hope
- Stony Brook University Hospital Pediatric Oncology Division
- Sunrise Fund & School Re-entry Program
- Sunrise Day Camp/Friedberg JCC
- Time For Tears
- Visiting Nurse Service of Hospice of Suffolk



